As health care goes digital, the most vulnerable risk being left behind

Good governance is essential for positive change. Data trusts — legal entities that steward individuals' grouped data for designated purposes such as health research — are just one mechanism to extract benefits from personal data for the public good.  If international norms are created around the collection, storage and use of data, co-operation across countries can ensue, leading to ever-larger and diverse data sets accessible to medical researchers around the world. The potential social benefits are enormous.