Quality of Life and Physical Activity in 629 Individuals With Sarcoidosis: Prospective, Cross-sectional Study Using Smartphones (Sarcoidosis App)

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Smartphones could be used for prospective research, especially for rare diseases where organizing large cohorts can be challenging, given their near ubiquitous ownership and ability to track objective and subjective data with increasingly sophisticated technology.

We developed a mobile app (Sarcoidosis App) for a prospective, cross-sectional study on individuals with sarcoidosis. The Sarcoidosis App was made available on both Apple and Android smartphones.

We demonstrate that smartphones can prospectively recruit, consent, and study physical activity, QoL, and medication usage in a large sarcoidosis cohort, using both passively collected objective data and qualitative surveys that did not require any in-person encounters.

智能手機可用於前瞻性研究,特別是對於組織大型隊列可能具有挑戰性的罕見疾病,因為它們幾乎無處不在,並且能夠通過日益複雜的技術跟踪客觀和主觀數據。

我們開發了一個移動應用程序(Sarcoidosis App),用於對結節病患者進行前瞻性橫斷面研究。結節病應用程序可在 Apple 和 Android 智能手機上使用。

我們證明,智能手機可以前瞻性地招募、同意和研究大型結節病隊列中的身體活動、生活質量和藥物使用情況,使用被動收集的客觀數據和不需要任何面對面接觸的定性調查。

 

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